Telling Your Story Part 2

Telling Your Story Part 2

  Sometimes in the telling of our stories, we get stuck. Stuck? Yes. Here are a few common contributors: 1. Guilt. We may have trouble forgiving ourselves. To be sure, we all make mistakes in the course of living through adversity. Even with all of the...
Telling Your Story Part 1

Telling Your Story Part 1

  Orientation. Disorientation. Reorientation. This is one way that my wife and I think about our 10 year journey of caregiving and chronic illness. My wife has lived with Dermatomyositis for 10 years as of this summer, and I am very proud of her. She continually...
Caregiver Tip #3: Say “No” to Say “Yes”

Caregiver Tip #3: Say “No” to Say “Yes”

  She confused me. Talented, smart, and decisive, she infused the air around her with energy and kindness. So, I kept recruiting her to help me. And, she continually declined. Politely. Finally, I convinced her to help lead a project. She brought creativity and...
Caregiver Tip #1: Ask and Learn

Caregiver Tip #1: Ask and Learn

Reeling from their fresh diagnosis, John and Mary drove home in silence. That evening after dinner, Mary broke the silence. “How do we know if you really have Parkinson’s Disease? Is this the kind of thing that requires a second opinion?” “I don’t know,” John answered...
Champion a Caregiver

Champion a Caregiver

After meeting hundreds (actually probably into the thousands now) of family caregivers, I have come to several firm conclusions: Family caregivers deserve a holiday, a parade, and a free week on a private beach to rest and recuperate! Even on their worst days, 99% of...

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