The Real Issue

The Real Issue

Snapshots of Transformation #3 Playing hide-n-seek and wishing that problems would “just go away” tends to be the first response for many of us. Avoidance is a self-defense mechanism for dealing with circumstances that we are not ready to handle. However, this tactic...
Accepting Help

Accepting Help

Snapshots of Transformation #2 In 2004, my upbeat and energetic wife was diagnosed with Dermatomyositis, which severely affected her muscles and left her in pain and limited capacity. After we announced the lie that we did not need help with meals any more after a...
What if it were me?

What if it were me?

Snapshots of Transformation #1 Transformative possibilities are afoot the moment you dare to put yourself in someone else’s shoes. What if it were me? What if this was happening to me? How would I feel? What would I be thinking? What would I need? How would I...
Staggering Along Together

Staggering Along Together

Love Story #1 On occasion, I am genuinely inspired by people I meet. About 10 years ago, I listened to a married couple talk about theirlife situation at a Parkinson’s support group. He is livingwith Parkinson’s Disease. She has continuing hip problems.So, they...
Feed Your Curiosity

Feed Your Curiosity

Best Practices for Family Caregivers #4 Consistent and insatiable learning is a hallmark of patients and family caregivers who are optimizing their situation. After 17 years helping my wife live well with Dermatomyositis and 15 years volunteering and leading the...
Carve Out 20 Minutes

Carve Out 20 Minutes

Best Practices for Family Caregivers #3 The latent and the palpable stress of family caregiving will wear you down. Worry, uncertainty, confusion, frustration, grief and anxiety pervade care scenarios. To counter these persistently detrimental forces, carve out 20...

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